The National Patients' Organization (NPO) has called for screening for a greater number of rare diseases in newborns. "The earlier a diagnosis is made, the higher the quality of life afterwards," Natalia Maeva, deputy chair of the NGO and chair of the "Rare Diseases and Transplants" section of the organization, told BNR.
According to data from the National Genetic Laboratory in Bulgaria, three mandatory screening tests are performed on babies, and only one of them is for a rare disease - phenylketonuria. NGOs insist on the creation of a National Strategy for people with rare diseases and point out that it is not clear how many people have such diseases in our country due to the incomplete registers of individual diseases. It is not known what part of these people receive treatment from the Health Insurance Fund and how many are forced to pay for it themselves when their disease is not part of the Ministry of Health’s list of rare diseases.
Nine people aged between 35 and 48 have been arrested in special police operations by the Directorate General for Combating Organised Crime against sexual exploitation of children. Two of those arrested had used false identities to contact young..
Construction of the National Children's Hospital will begin in June next year , interim Prime Minister Dimitar Glavchev said at a briefing. The hospital will have 26 wards and about 400 beds . It will provide complex care for young patients. "The..
A fire broke out in the Varna office of a party which was represented in the last National Assembly and which is contesting the forthcoming elections on 27 October. The premises, located in a building in the centre of the city, were completely burnt..
It is our intention that even with the 2025 budget, defense spending will reach a higher level than 2.5% of the Gross Domestic Product, said the Deputy..
Bulgaria is the 21 st safest country out of 38 countries in Europe, ranking between Poland and Spain. This country gets 1.643 points measured by..
State-owed natural gas supplier Bulgargaz has hired a legal councillor to defend the interests of the Bulgarian gas company in connection with the..
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