The National Patients' Organization (NPO) has called for screening for a greater number of rare diseases in newborns. "The earlier a diagnosis is made, the higher the quality of life afterwards," Natalia Maeva, deputy chair of the NGO and chair of the "Rare Diseases and Transplants" section of the organization, told BNR.
According to data from the National Genetic Laboratory in Bulgaria, three mandatory screening tests are performed on babies, and only one of them is for a rare disease - phenylketonuria. NGOs insist on the creation of a National Strategy for people with rare diseases and point out that it is not clear how many people have such diseases in our country due to the incomplete registers of individual diseases. It is not known what part of these people receive treatment from the Health Insurance Fund and how many are forced to pay for it themselves when their disease is not part of the Ministry of Health’s list of rare diseases.
Attempts to enter the country illegally have fallen by 70% compared to 2023 , caretaker Prime Minister Dimitar Glavchev said in Brussels ahead of the European Council. Asked by BNR whether talks were underway with Turkey on the establishment of an..
The Council for Electronic Media (CEM) re-elected Bulgarian National Radio Director General Milen Mitev to a second term of three years. He got the votes of three out of the five members of CEM – the commission’s chairperson Gabriela..
According to Czech MEP from the European People's Party (EPP) Tomáš Zdechovský, the vote for Bulgarian Commissioner-designate Ekaterina Zaharieva is not guaranteed. "The problem is that many of our colleagues from the Socialists and the Liberals..
Bulgaria is the 21 st safest country out of 38 countries in Europe, ranking between Poland and Spain. This country gets 1.643 points measured by..
State-owed natural gas supplier Bulgargaz has hired a legal councillor to defend the interests of the Bulgarian gas company in connection with the..
Sofia is hosting the biggest motor show in Europe this year, Alexander Kostadinov, Chairman of the Board of the Association of Car Manufacturers told..
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