The National Patients' Organization (NPO) has called for screening for a greater number of rare diseases in newborns. "The earlier a diagnosis is made, the higher the quality of life afterwards," Natalia Maeva, deputy chair of the NGO and chair of the "Rare Diseases and Transplants" section of the organization, told BNR.
According to data from the National Genetic Laboratory in Bulgaria, three mandatory screening tests are performed on babies, and only one of them is for a rare disease - phenylketonuria. NGOs insist on the creation of a National Strategy for people with rare diseases and point out that it is not clear how many people have such diseases in our country due to the incomplete registers of individual diseases. It is not known what part of these people receive treatment from the Health Insurance Fund and how many are forced to pay for it themselves when their disease is not part of the Ministry of Health’s list of rare diseases.
Bulgaria's Ministry of Foreign Affairs has called on Bulgarians in Iran to immediately leave the country due to the escalation of tensions in the region . Those who need to remain in the country should report their location and planned duration of stay..
Bulgarian citizens in the territory of the State of Israel are advised to remain calm, strictly adhere to the instructions of the Israeli Civil Defense , and monitor current information, the Bulgarian Foreign Ministry recommends. Foreign..
The Ministry of Foreign Affairs calls on Bulgarian citizens located in the Middle East region and in particular on the territory of the Republic of Iraq, the Kingdom of Bahrain, the United Arab Emirates and Saudi Arabia to strictly adhere to the..
The 18 th edition of Sofia Pride is taking place in Sofia today under the motto: We are people, not propaganda, a reminder that behind every story,..
Galin Tomov created an impressive portrait of President Donald Trump especially for his birthday (June 14) on a carpet, using a traditional Bulgarian..
Bulgaria’s Ministry of Foreign Affairs established a Coordination Centre in connection with the worsening situation in the Middle East. It was formed..
+359 2 9336 661