Text size

Bulgaria marks international Rare Disease Day

published on 2/28/25 6:15 AM

Photo: BTA, archive

At the initiative of the European Union of Patient Organizations for the Fight against Rare Diseases, on the last day of February, we focus on people living with a rare disease. Awareness campaigns are organized to raise public awareness of this issue.

March marking the World Day of Rare Diseases takes place in Sofia

In Bulgaria, nearly 370,000 people live with rare diseases.

Due to the lack of a national strategy and plan for rare diseases, Bulgarian patients are deprived of equal access to 19 of the 24 areas of healthcare for which the EU provides high-quality expert care, the National Alliance "Rare Diseases - Bulgaria" warns.

The organization calls on the authorities in our country, in addition to the traditional balloon release and demonstration of empathy for people with rare diseases, to take energetic and consistent actions to make the daily lives of these patients full and dignified.

Последвайте ни и в Google News Showcase, за да научите най-важното от деня!

Radio Bulgaria News rare disease rare diseases

More from category

Phenomena STEAM Museum opens in Sofia

Sofia has a new spot for curious minds. Phenomena is a museum where science and art come together — a place to experiment, discover, and get hands-on with the wonders of how the world works. Rooted in the spirit of STEAM education — that’s Science,..

published on 11/2/25 11:05 AM

A politician, diplomats and military figures: the heroes of Sofia's new museum.

‘In my view, the period between Bulgaria’s liberation and 1944 was especially significant because I believe that the country was then on the right developmental path,’ says collector Filip Milanov. ‘That era produced many people of exceptional integrity..

published on 11/2/25 10:15 AM

Fearless Bulgarian Women Who Said “No” to the Rules

On 1 November, Bulgaria’s National Awakeners' Day, Sofia’s Gina Kuncheva Square will come alive in a truly remarkable way. From midday, the Oborishte Municipality and the Buditelkite Foundation will unveil the country’s first interactive outdoor museum,..

published on 11/1/25 7:40 AM